MS Muscle Spasticity: What It Is, and What to Do About It

MS Muscle Spasticity: What It Is, and What to Do About It

If you live with multiple sclerosis (MS), you’ve probably met one of its pushiest symptoms: muscle spasticity. Maybe it’s your legs that feel like they’ve been replaced with heavy boards, or your calf that loves to cramp at exactly 3 a.m. Whatever your version looks like, MS spasticity can turn simple movements into a team project between your brain, your muscles, and your patience.

The good news? While spasticity is common in MS, it’s also treatable. You’re not stuck with “forever stiffness mode.” With the right mix of medical treatment, daily habits, and smart hacks, many people find real relief and get back to doing more of what matters.

This guide breaks down what MS muscle spasticity actually is, why it happens, what it feels like, andmost importantlywhat you can do about it today, this week, and long-term.

What Is MS Muscle Spasticity?

Muscle spasticity is a type of muscle tightness and stiffness that happens when the nervous system has been injured or damaged. In MS, immune cells attack the protective myelin coating around nerves in the brain and spinal cord. That damage scrambles the signals that usually tell your muscles when to tighten and when to relax.

Instead of smooth, coordinated movement, the muscles can become “overactive.” They may stay partially tightened all the time or suddenly clamp down in spasms. This is what people describe as feeling “stiff,” “locked,” or “like my legs are made of concrete.”

How Spasticity Happens in MS

Normally, your brain sends messages down the spinal cord that help control muscle tone. Some signals tell muscles to activate; others tell them to chill. In MS, damaged nerve pathways interfere with that balance. The “brake” signals are weakened, so the “go” signals win more often.

The result is:

  • Increased muscle tone: Muscles feel tight or resistant when you try to move them.
  • Overactive reflexes: A light stretch or touch can trigger a big reaction, like jumping or kicking.
  • Spasms and clonus: Sudden jerking movements or rhythmic tapping (for example, a foot that rapidly bounces).

How Common Is MS Muscle Spasticity?

Spasticity is one of the most common MS symptoms. Many estimates suggest that up to 80% of people with MS experience some degree of spasticity over the course of their illness, especially in the legs. For some people it’s mild and occasional; for others it’s a major source of pain, fatigue, and mobility problems.

Spasticity can be:

  • Helpful (sometimes): Mild stiffness can give a bit of stability when standing or walking.
  • Harmful (often): Moderate to severe spasticity can make it hard to bend your knees, sit comfortably, sleep, or safely transfer in and out of bed or a car.

What Does MS Spasticity Feel Like Day to Day?

Everyone’s experience is different, but common ways people describe MS spasticity include:

  • “My legs feel like tight rubber bands.”
  • “If I try to bend my knee, it fights back.”
  • “My foot taps all by itself when I rest it on the floor.”
  • “The stiffness gets worse at night or when I’m stressed.”

Common symptoms include:

  • Stiffness in the calves, thighs, groin, or buttocks
  • Difficulty bending your knees, hips, or ankles
  • Legs that want to stay straight or clamp together
  • Sudden jerks or kicks when you move or roll over
  • Cramping pain or a “locked in place” feeling

Spasticity doesn’t just affect how your muscles feelit affects everything they help you do: walking, sitting, dressing, transferring, driving, sleeping, and even intimacy. That’s why taking it seriously is so important.

Common Triggers You Can Actually Do Something About

Spasticity often flares when something irritates your body or nervous system. Think of these as “volume knobs” that can turn stiffness up or down. Common triggers include:

  • Infections, especially urinary tract infections (UTIs) or respiratory infections
  • Full bladder or constipation
  • Pain from other causes (like pressure sores or joint pain)
  • Stress, anxiety, or fatigue
  • Sudden position changes
  • Tight clothing or braces pressing on nerves or muscles
  • Extreme heat (hot baths, saunas, very hot weather) for some people

Identifying your personal triggers is one of the simplest and most powerful steps you can take. A quick note in your phone or journal“extra stiff after poor sleep” or “spasms worse on hot days”can help you and your care team adjust your plan.

How Doctors Diagnose and Evaluate Spasticity

Your neurologist, physiatrist (rehabilitation doctor), or physical therapist will usually:

  • Ask about your symptoms, daily challenges, and triggers
  • Check muscle tone by gently moving your arms and legs
  • Look for increased reflexes, clonus, and range of motion limits
  • Assess walking pattern, balance, and risk of falls

They may use rating scales (such as the Modified Ashworth Scale) to measure how severe your spasticity is and track how it responds over time. This helps guide treatment decisionswhether you’re a good candidate for oral medications, injections, or more advanced interventions.

Treatment Options: From Stretching to High-Tech Pumps

There’s no single “right” treatment for MS muscle spasticity. Most people do best with a combination approach: movement + trigger management + medication (if needed) + adaptive tools. Here are the main options your care team might discuss.

1. Daily Movement, Stretching, and Physical Therapy

If spasticity is mild to moderate, stretching and movement are your first-line tools. Even when you’re using medications or injections, stretching remains a core part of treatment.

Helpful strategies include:

  • Daily stretching routines for calves, hamstrings, hip flexors, and inner thighs
  • Range-of-motion exercises (moving joints gently through their full range)
  • Guided physical therapy (PT) to build strength, flexibility, and safe movement patterns
  • Occupational therapy (OT) to adapt daily tasks like dressing, transferring, and bathing
  • Regular low-impact activity like walking, stationary biking, aquatic therapy, or gentle yoga (as approved by your care team)

Think of movement as “telling your nervous system what you want.” Consistent stretching and activity help reduce stiffness, prevent contractures (permanent shortening of muscles), and maintain independence.

2. Medications for MS Muscle Spasticity

When stiffness and spasms interfere with walking, sleep, or basic activities, your clinician may recommend oral medications that help relax muscles by acting on the brain or spinal cord.

Common options include:

  • Baclofen: Often a first-line drug for MS spasticity. It works on GABA receptors in the spinal cord to reduce overactive reflexes.
  • Tizanidine: Another central-acting muscle relaxant that can reduce spasms and clonus.
  • Diazepam or other benzodiazepines: Sometimes used at night for severe spasms, though side effects like sedation and dependence mean they’re generally used cautiously.
  • Dantrolene: Acts directly on muscle fibers; used in selected cases due to potential liver side effects.
  • Gabapentin or similar medications: Sometimes helpful when spasticity is accompanied by nerve pain.

These medications can be very helpful, but they also come with possible side effects like sleepiness, dizziness, or weakness. The goal is not to make you floppyit’s to strike a balance where muscles are relaxed enough to move but strong enough to support you.

Always work closely with your neurologist to find the lowest effective dose and to adjust your regimen if side effects become a problem.

3. Injection Therapies: Targeted Help for Stubborn Muscles

For spasticity that’s severe in specific muscle groupslike a clenched fist, a tightly pointed foot, or thighs that clamp togetherinjection therapies may be recommended.

These can include:

  • Botulinum toxin (Botox and similar products): Injected directly into overactive muscles to reduce tone for several months at a time.
  • Phenol or alcohol nerve blocks: Less commonly used, but can reduce spasticity by partially interrupting nerve conduction.

Injections are usually combined with stretching and therapy while the muscle is more relaxed, to maximize gains in flexibility and function.

4. Intrathecal Baclofen Pumps and Advanced Options

When spasticity is severe and widespread, and oral medications either don’t work or cause too many side effects, your team might discuss an intrathecal baclofen pump.

This small pump is surgically placed under the skin of the abdomen and connected to a catheter that delivers baclofen directly into the spinal fluid. Because the medication goes straight to where it’s needed, much lower doses can be used with fewer whole-body side effects.

Advanced options are reserved for more complex cases and require evaluation by a specialized spasticity or rehabilitation clinic. They may also explore experimental or emerging therapies through clinical trials.

At-Home Strategies to Make Life Easier

Medical treatments are important, but what you do at home every day matters just as much. A few practical strategies:

  • Keep a routine: Try to stretch at the same times every daypair it with existing habits (after brushing your teeth or before bed).
  • Check your positioning: Avoid sitting or lying in one position for too long. Use pillows, cushions, or wedges to support hips and knees in a comfortable, slightly bent position.
  • Mind your sleep: Poor sleep increases pain and stiffness. Work on a calming bedtime routine and comfortable mattress/pillow setup.
  • Stay hydrated and regular: Constipation and bladder issues can worsen spasticity. Follow your care team’s advice on fluids, fiber, and bowel/bladder management.
  • Watch temperature: If heat worsens your symptoms, use cooling vests, fans, or air conditioning when possible. If cold stiffens you up, layer clothing and keep muscles warm.
  • Use mobility aids without guilt: Canes, walkers, or scooters aren’t “giving up.” They’re tools that help you save energy and stay safer.

Small changes often add up. The goal is not perfectionit’s “a little better than yesterday.”

When to Call Your Neurologist Right Away

Contact your healthcare team promptly if:

  • Your spasticity suddenly gets much worse, especially over hours to days
  • You have new or higher fever, burning with urination, or other signs of infection
  • You notice new weakness, numbness, or trouble walking beyond your usual baseline
  • Painful spasms keep you from sleeping or safely moving around
  • You fall more often or feel unsafe at home

Sudden changes can signal infections, MS relapses, or other medical issues that need timely attention.

Living Well With MS Spasticity: Mindset Matters Too

Spasticity isn’t just a “muscle problem.” It can affect your confidence, relationships, mood, and sense of independence. It’s normal to feel frustrated, angry, or sad when your body won’t cooperate.

Some helpful mindset shifts and supports:

  • Build a team: Neurologist, rehab doctor, PT, OT, nurse, counselor, and support groupsMS is too big for one person to handle alone.
  • Focus on what you can control: You may not control the diagnosis, but you can control habits like stretching, sleep routines, and trigger management.
  • Celebrate small wins: “I walked a little farther today,” “I slept better last night,” or “I did my stretches three days in a row” are real victories.
  • Ask for help early: Don’t wait until you’re utterly exhausted or overwhelmed. Adjustments to meds, equipment, or routines can make a big difference.

Living with MS spasticity is a long game, but with the right tools, support, and information, it’s absolutely possible to carve out a life that still feels like yours.

Real-Life Experiences: Living With MS Muscle Spasticity

Statistics and treatment charts are helpful, but sometimes what you really want to know is: What does this look like in real life? Here are a few composite examples (based on real-world patterns) that show how people with MS spasticity learn to manage it over time.

Case 1: The Nighttime Calf Cramp Warrior

Maria is in her 40s and has relapsing-remitting MS. Her biggest complaint isn’t fatigue or brain fogit’s the calf spasms that wake her up around 3 a.m. Her legs feel like someone is twisting them with an invisible wrench.

Her neurologist identifies mild to moderate spasticity that flares at night. Together, they build a plan:

  • She starts a short stretching routine before bed, focusing on calves and hamstrings.
  • She switches to a firmer mattress and a pillow under her knees so her legs aren’t locked straight.
  • Her doctor prescribes a low dose of baclofen at night, which is slowly adjusted until spasms are manageable.
  • She keeps a journal of triggers and learns that dehydration and late-night screen time make things worse.

The spasms don’t disappear completely, but they’re far less frequent and less intense. Maria feels more rested, less anxious about bedtime, and more in control.

Case 2: The “Stiff-Legged” Commuter

James, in his 30s, works at a desk job. By the end of the day, his legs feel so tight that getting out of his car at home is a whole event. He worries it’s just “getting out of shape,” but his PT explains that sitting still for long periods feeds into his MS spasticity.

Changes that help him include:

  • Setting a timer to stand and stretch every 45–60 minutes
  • Using an adjustable desk so he can alternate between sitting and standing
  • Adding a 5–10 minute walk at lunch and gentle stretching when he gets home
  • Working with PT to improve his gait pattern and leg strength

After a few weeks, he notices that his legs feel less “cemented” at the end of the day. The stiffness is still there, but it’s more of a nuisance than a show-stopper.

Case 3: Severe Spasticity and the Power of a Team Approach

Patricia has progressive MS and significant spasticity affecting both legs. Walking is challenging, and transferring in and out of bed or the car requires help. She’s already tried several oral medications, but they either make her too sleepy or don’t work well enough.

Her neurologist refers her to a specialized spasticity clinic, where she’s evaluated by a rehab doctor, PT, OT, and nurse specialist. They suggest:

  • Botulinum toxin injections into specific muscle groups that are especially tight
  • More intensive stretching and positioning strategies right after injections
  • Trial of an intrathecal baclofen pump to reduce whole-body spasticity
  • Adjusting her wheelchair cushions and adding supportive seating to prevent pressure points and pain

After the pump is placed and carefully adjusted, Patricia notices that transfers are smoother, spasms are less intense, and caregivers find it easier to help her with daily tasks. She still has MS spasticity, but it no longer dominates every moment of her day.

Small Habits, Big Impact

Across many people with MS, some common themes emerge:

  • Consistency beats perfection: Doing shorter stretches every day usually works better than a long routine once a week.
  • Communication is key: People who openly share what’s happeningwith their doctor, therapist, family, or support grouptend to get help sooner and more effectively.
  • Plans evolve: A strategy that works in your 30s might need updating in your 40s. Being open to adjustment makes life easier.

Most importantly, you’re not “failing” if you need medication, injections, a pump, or mobility aids. You’re succeeding at adapting to a complex conditionand that’s something to be proud of.

Conclusion: You Don’t Have to “Just Live With It”

MS muscle spasticity is common, but it isn’t something you have to quietly endure. Understanding what it is, how it behaves, and what triggers it gives you power. So does building a team-based plan that combines stretching, smart daily habits, and the right medical treatments for your situation.

Spasticity may be part of your MS story, but it doesn’t get to be the whole plot. With knowledge, support, and the right tools, you can write a version of your life where stiffness is managedand your goals and joy take center stage.